MohsAIQ Registry

FAQs

1. How will similar proposals be handled?
   • The proposals will be reviewed on a first come, first serve basis.
2. Will the process for review be blinded?
   • Yes – authors of proposals will be removed by ACMS administration prior to being sent to the committee for review.
3. How many proposals can be submitted by members and in what time period?
   • Limit of 2 proposals (whether or not accepted) in a 6-month period
   • Limit of 2 proposals from an individual PI can be considered simultaneously
4. What will the quality control metrics be?
   • Review of project proposal by the Data Management Working Group
   • Review of final paper by the ACMS Executive Committee prior to submission
5. What is the expected timeline from submission to access of data?
   • ~3 months
   • Please see submission tab for more details
6. If I have questions, who do I contact?
   • Please email registry@mohscollege.org
7. What types of research questions cannot be answered with this dataset?
   • Outcomes (prospective outcomes not input into database)
   • Longitudinal questions (beyond day of original surgery)
   • Patient Reported Outcome Measures (PROMs)

Examples of Completed Research Requests

Examples of completed research requests coming soon.

MohsAIQ Publications

MohsAIQ publications coming soon.

Data Use Agreement

Click here to view the data use agreement.

DUA

ACMS members can now request MohsAIQ Registry data for use in research projects. Data requests are submitted in two parts. Please review the information below for more information and to submit your request. Please direct any questions to registry@mohscollege.org.

Step 1 Form - Preliminary Request for Data

This Step 1 form is a brief description of the information requested from the ACMS MohsAIQ Registry. The ACMS Data Use and Validation Subcommittee, National Registry and Outcome Committee Leadership and the ACMS Executive Committee will evaluate the request. A non-refundable submission fee of $100 is required to evaluate and process the Step 1 form. Please allow 6-8 weeks for processing. If the Step 1 form is approved, the submitter will be invited to complete the more detailed Step 2 form for final ACMS approval.

Information required for Step 1 Form

• Demographics
  • Project title
  • Principle investigator and other individuals involved
  • Administrative contact information
• Research Purpose and Hypothesis
• Research Interests
  • Funding and IRB approval
  • Intended publication venue
• Proposal Synopsis
  • Project description
  • Data parameters
  • Project timeline

Document uploads required in Step 1 Form

• ACMS Conflict of Interest Form

Step 2 Form - Full Request for Data

This supplemental form is an addendum to the previously approved Step 1 form for the purpose of further detailing the information needed for the research project. An additional fee of $400 is required for processing. This fee is refundable if the Step 2 form is not approved. Please allow 6-8 weeks for processing. Note: If the project is overly complex an additional fee may be required. Upon approval and receipt of $400 and any additional fees, a Data Use License will be required.

Information required for Step 2 Form

• Demographics
  • Changes to previously submitted information
  • All contributors, collaborators and/or coauthors
• Protocol
  • Specific aims/hypotheses
  • Background and rationale
  • Study design, population, and procedures
  • Inclusion and exclusion criteria
  • Subject risk and information security
  • Ethical considerations
• Parameters
  • Parameters or data fields requested for extraction
  • Changes to previously submitted information

Optional document uploads for Step 2 Form

• Research related documents/data collection forms

Data Dictionary

• 1  Key

  • MohsAIQ encounter ID 

  • MohsAIQ patient ID

    • The number of tumors per patient

  • MohsAIQ provider ID 

  • MohsAIQ site ID 

• 2  Patient

  • Patient age at encounter 

  • Sex 

• 3  Site

  • Which EHR/EMR does your practice use?

  • Site location 

  • Primary Practice Type 

• 4  Case

  • Year of Mohs surgery 

  • Was this patient referred from a provider outside your practice or by a provider who does not have access to the patient's electronic health record? 

• Medication

  • 5  Antibiotics

    • Were antibiotics given on the day of surgery?

      • What type of antibiotics were given?

      • What was the indication for pre-operative antibiotics?

  • 6  Anticoagulant

    • Is the patient taking prescription anticoagulant(s) and/or aspirin prescribed/recommended by a physician?

      • Was the anticoagulation regiment discontinued (including dosages delayed or held), changed, or reduced perioperatively?

      • Why was the anticoagulant discontinued, changed or reduced? 

      • Is there documentation within the medical record of discussion of discontinuation, change or reduction of perioperative anticoagulation with another physician? 

  • 7  Immunosupressants

    • Is patient immunosuppressed?

      • Is patient on immunosuppressive medication?

      • What immunosuppressive medications is the patient taking currently?

        • Select type of calcineurin inhibitors

        • Select type of mTOR inhibitors 

        • Select type of nucleotide synthesis inhibitors 

        • Select type of purine/pyrimidine analogues

        • Select type of systemic corticosteroid

        • Select type of TNF inhibitor

      • What type of immunosuppression (medical cause)?

        • Select type of organ transplantation

  • 8  Opioid

    • Did the patient receive a prescription for opioid / narcotic pain medication (prescription prior to or at the time of surgical discharge from the Mohs surgeon) following Mohs micrographic surgery? 

      • Do any of the following apply (indications for opioid)? 

      • Did the patient have one of the following reasons for prescription of opioid / narcotic pain medication? 

• 9 Comorbidities

  • Does the patient meet AHA guidelines for endocarditis or orthopedic prophylaxis?

  • Tobacco smoking status

• 10  Mohs Surgery

  • What features were seen on the Mohs stage?

  • For each of the following - BCC, SCC, melanoma, no cancer seen, other tumor types:

    • Were immunohistochemical stains used on frozen sections during the Mohs surgery?

      • What immunohistochemical stains were used? 

  • Were permanent sections sent? This includes frozen debulking or Mohs specimens thawed for permanent sectioning, or additional margins taken for permanents. 

    • Why were permanent sections sent? 

  • Number of Mohs stages 

  • Postoperative length (centimeters) 

  • Postoperative width (centimeters) 

• Reconstruction

  • 11  Reconstruction

    • Was the tumor defect reconstructed? 

    • Was the reconstruction performed by the same Mohs surgeon or another Mohs surgeon within the same practice? 

      • What type of surgeon reconstructed the tumor? 

    • Was there partial closure with second intention healing? 

    • When was the tumor reconstructed? 

    • Type of reconstruction performed 

  • 12  Flap Reconstruction

    • Type of flap reconstruction

    • For each of the following: advancement, rotation, transposition, interpolation

      • Subtype of flap

      • Area under the subtype flap

  • 13  Graft Reconstruction

    • Type of autograft reconstruction 

      • Length of full-thickness graft 

      • Width of full-thickness graft 

      • Length of split-thickness graft

      • Width of split-thickness graft

  • 14  Linear Reconstruction

    • Type of linear reconstruction 

    • Cheiloplasty size

    • Length of complex linear reconstruction

    • Length of intermediate linear reconstruction

    • Length of simple linear reconstruction 

• 15  Tumor Characteristics

  • What is the Mohs surgery Appropriate Use Criteria score for this lesion?

  • Preoperative length

  • Preoperative width

  • Is this a primary or previously treated tumor, in the judgement of the surgeon? 

    • Incompletely treated or recurrent question or pre-treated? 

      • How was the tumor previously treated? Check all that apply. 

        • Is the lesion within the area of the previous tumor or defect prior to reconstruction? 

        • Has the lesion in question been confirmed to have DIFFERENT histology to the previously treated tumor? (i.e. histology confirms BCC and BCC was treated in the past)? 

        • Is the lesion in question contiguous with the surgical scar after treatment of the previous tumor? (i.e. inside the greatest radius of the final defect measured from the center of the closure)?

        • Is the lesion within the area of the previous tumor or defect prior to reconstruction? 

        • Has the lesion in question been confirmed to have DIFFERENT histology to the previously treated tumor? (i.e. histology confirms BCC and BCC was treated in the past)? 

        • Is the lesion in question contiguous with the surgical scar after treatment of the previous tumor? (i.e. inside the greatest radius of the final defect measured from the center of the closure)?

        • Specify other type of previous treatment 

  • Side of lesion

  • Surgical site (If the tumor spans multiple areas (for example nose and cheek), please select the predominant area.

  • Type of tumor: Preoperative diagnosis 

    • BCC: Subtype (Based on preoperative biopsy report) (Check all that apply)

    • Melanoma: In situ or Invasive? 

      • Breslow depth

      • High risk features 

    • Select type of rare tumor

      • Sarcomatoid change?

      • Primary dermal or Subcutaneous Leiomyosarcoma? 

      • Muir-Torre? 

    • SCC: High risk features?

      • Select high risk feature

      • Breslow depth biopsy or Mohs?

      • Invasion to cartilage, muscle or bone biopsy or Mohs? 

      • Lymphovascular invasion biopsy or Mohs?

      • Perineural invasion biopsy, Mohs or Both? 

        • Nerve size for biopsy? 

        • Nerve size for Mohs?

      • SCC: Subtype

        • Type of poorly-differentiated SCC